Seriously! How cool is that?? She also emails. And she emailed to say that she checked the blog but there wasn’t an update. This blogs for you Grandma Mifflin! I suppose I should start with December 2015. I failed to post that we had an amazing opportunity. Let’s backtrack a bit more… If you’ve read How We Ended Up Here –… Read more »
Jamey is feeling GREAT!!! We are down to scheduled once a week visits to clinic/hospital for labs and appointments. He is still working from home daily — but he has been to the office once or twice for a few hours. His immune system is still quite suppressed. We can expect that to be the case for several more months…. Read more »
He is doing great!! We are still going to the hospital twice a week. They draw blood and tell us how to change his meds around. We’ve gotten pretty used to the process and it is now just part of our week. Jamey had been getting pretty light headed when he stood up. We would check his bp and it… Read more »
I know we’ve talked about all of the meds Jamey takes to keep his body happy with the new kidney. But let’s talk about clinic day. The doctor takes a look at all of his lab results and all of the meds he takes and then she adjusts things. We’ve been told to be prepared for meds to be moved… Read more »
This is a late post. Last week, the day we came home from the hospital, I cleaned all traces of dialysis out of our bedroom. Jamey walked in the house, hugged the girls, and then went straight to our shower. I cleaned out every bit of dialysis supplies while he was in the bathroom. I wanted him to see his… Read more »
Jamey’s immune system is shut down almost completely for the next couple months. This helps his body not attack the new kidney. The immunosuppressants will be relaxed a bit around October. We know everyone wants to see him. Hug him. Shake his hand. Please know he is missing this contact too. We are doing everything we can to limit his contact… Read more »
Last night I did something I haven’t done since Christmas Eve. I silenced my phone while we slept. We are no longer waiting on a call about a kidney. It was lovely. 😄 Jamey slept pretty well in between taking pain meds and peeing. Our nurses/doctor told him that the crazy amount of urine will regulate in a couple months.