Here we are! We made it 4 weeks with little difficulty. Yay!! We continue driving downtown to the hospital two days a week. The last few visits have been pretty uneventful. I hope this is a sign of things to come. Rumor has it we will drop down to only one visit a week pretty soon. Today we found out… Read more »
He is doing great!! We are still going to the hospital twice a week. They draw blood and tell us how to change his meds around. We’ve gotten pretty used to the process and it is now just part of our week. Jamey had been getting pretty light headed when he stood up. We would check his bp and it… Read more »
I know we’ve talked about all of the meds Jamey takes to keep his body happy with the new kidney. But let’s talk about clinic day. The doctor takes a look at all of his lab results and all of the meds he takes and then she adjusts things. We’ve been told to be prepared for meds to be moved… Read more »
I mentioned last week that Jamey has to attend Clinic twice a week for the next several weeks. Today was our second visit to Clinic (or the hospital lab and transplant office). I asked him this weekend how he was feeling — and the feeling was its a long time between Friday and Tuesday when you are wondering if your… Read more »
Jamey’s immune system is shut down almost completely for the next couple months. This helps his body not attack the new kidney. The immunosuppressants will be relaxed a bit around October. We know everyone wants to see him. Hug him. Shake his hand. Please know he is missing this contact too. We are doing everything we can to limit his contact… Read more »
Last night I did something I haven’t done since Christmas Eve. I silenced my phone while we slept. We are no longer waiting on a call about a kidney. It was lovely. ? Jamey slept pretty well in between taking pain meds and peeing. Our nurses/doctor told him that the crazy amount of urine will regulate in a couple months.