After my big initial cry I started trying to rationalize all of this. It isn’t a heart. It isn’t his brain. It is just a kidney. We can get a kidney from a living donor. People only need one. This isn’t cancer. No one is dead. We can deal with this. We can do this. Dialysis will keep him alive… Read more »
Hb has had a (quiet) hard time with all the changes lately. It was really hard for her when she couldn’t hug Jamey whenever and however she wanted. Today she ran up to him to give him a hug and exclaimed, “I can’t feel your pipes!” Jamey and I just looked at each other for a minute. Then we realized… Read more »
[fvplayer src=”http://feger.net/wp/wp-content/uploads/2015/02/bethMsgEdit.wav”] Woot! đ Just one more class!!!
Well, this is as normal as its going to get — for a while anyway. We woke up really early this morning to get Jamey disconnected and get his cycler packed. Then we drove through a tiny blizzard with the rest of Denver at rush hour to get him to the airport. The girls and I went with him so… Read more »
Happy Valentine’s Day! I made this video for J on our anniversary this past September. I haven’t shared it publicly. I think today is a good day to share. [fvplayer src=”http://feger.net/meagan/lucky.mp4″]
Antibodies. We can have them in our blood if we’ve been exposed to another persons tissue. Examples: blood transfusion, having babies, prior transplants. Unfortunately having an auto immune disease can also cause you to have antibodies. Antibodies are like a small but fierce army in your body. While your white blood cells attack anything foreign, specific antibodies are trying to simply eradicate… Read more »
We did it! Last night was our second night. I will admit it was a little stressful on Wednesday night. We have spent so long doing this in a small hospital room. Everything has its own place and is easy to get to and access. I did find a spot for everything and label all of the drawers and boxes here… Read more »
All of our supplies are here! This is about one month (and a little extra) worth of supplies. While it is over 50 boxes – I don’t think it takes up as much room as I thought it would. It will be a bit different than training. During training we used one 6000 ml bag and one 3000 ml bag. He… Read more »
We love Peggy and Sally. But we are so excited to go home! Tuesday was Jamey’s last day in Aurora! Woo Hoo!!!!! We also got our first delivery of supplies. AND, Jamey got to bring home our cycler! Good Day!
We are still in Aurora. Sigh. We have passed all of the tests but we are still waiting for our supplies. We have to come here for dialysis until we can do it at home. Blah. He’s working. I’m working. It is nearly 70 outside and we are in a tiny room with no windows or cell service. Yup. Excellent…. Read more »