All of our supplies are here! This is about one month (and a little extra) worth of supplies. While it is over 50 boxes – I don’t think it takes up as much room as I thought it would. It will be a bit different than training. During training we used one 6000 ml bag and one 3000 ml bag. He needs 8000 ml each night and we need the extra 1000 ml for priming the cycler and catheter. Once the delivery guy was done I noticed that all of the boxes said 5000 ml. This means we will be doing two 5000 ml bags each night. A little more waste – BUT, all of the boxes are the same size! And it means we will use one box a night. Each box contains two 5000 ml bags. Anyway, I’m pretty happy about it 🙂 The color on the box is the strength of the dialysate. We have only needed yellow. The green and red are a higher sugar concentration and they will remove more fluid from Jamey if we use them. An example would be maybe after flying. If his legs swell it is harder for him to get rid of the extra fluid than it is for someone with functioning kidneys. So he would use a green or red box as his secondary bag to help with the fluid retention that night.
The bigger boxes stacked on the left of this image are manual bags. If he power goes out or he isn’t going to get 8 hours of sleep (so the cycler can do its thing) he can use a manual bag to fill during the day. He would let it dwell for 4 hours and then drain and fill again. 3-4 times a day.
Wish us luck! Tonight will be our first shot at doing this at home.