Want some good news?
Feeling like we are on top of the world! Creatinine: 1.1 (That is the BEST number we have seen in several years.) I’ll take it!! Woo Hoo!
Category Archives: Clinic
Up and Down
As I mentioned earlier in the week – we visit the hospital once a week. We get some results that day, others come a couple days later. Unfortunately, the result we got that day said that J’s creatinine had creeped back up a bit. Blah. It isn’t dangerously high – but it isn’t at its average low. So, we pray… Read more »
Health(y)-ier
I think back to the classes we sat in. Do you remember we had to go to classes so Jamey could be placed on the transplant list? They told us that transplant is not a cure. Transplant is NOT a cure. Some people get a new kidney and bounce right back. Some people don’t. We happen to fall in that… Read more »
My Grandma Reads My Blog…
Seriously! How cool is that?? She also emails. And she emailed to say that she checked the blog but there wasn’t an update. This blogs for you Grandma Mifflin! I suppose I should start with December 2015. I failed to post that we had an amazing opportunity. Let’s backtrack a bit more… If you’ve read How We Ended Up Here –… Read more »
Now’s not a good time…
Then: “I know it’s Christmas Eve, but we need you to fly home. Now.” “Your creatinine is still increasing. We are scheduling your catheter placement tomorrow.” “Your creatinine is STILL increasing. You don’t have time to heal for 6 weeks before starting dialysis. Your starting two days after surgery. The only center that can train you is in Aurora. Be… Read more »
Drum Roll Please!!
We had another clinic visit with fantastic news! Guess who gets to go to the season opener?? You got it!! We’ll be UNITED IN ORANGE on Sunday morning! It is a crowded space – but it is open air with lots of places we can go if we feel his health is being compromised. The last game we went to… Read more »
Updates!!
Jamey is feeling GREAT!!! We are down to scheduled once a week visits to clinic/hospital for labs and appointments. He is still working from home daily — but he has been to the office once or twice for a few hours. His immune system is still quite suppressed. We can expect that to be the case for several more months…. Read more »
One Month
Here we are! We made it 4 weeks with little difficulty. Yay!! We continue driving downtown to the hospital two days a week. The last few visits have been pretty uneventful. I hope this is a sign of things to come. Rumor has it we will drop down to only one visit a week pretty soon. Today we found out… Read more »
3 week post op update
He is doing great!! We are still going to the hospital twice a week. They draw blood and tell us how to change his meds around. We’ve gotten pretty used to the process and it is now just part of our week. Jamey had been getting pretty light headed when he stood up. We would check his bp and it… Read more »
2 Weeks!
14 days. Creatinine down 18 points. Weight (extra fluid and toxins) down nearly 30 lbs. Phosphorus down. Potassium down. Liver enzymes down. Thankful and Amazed.