I think back to the classes we sat in. Do you remember we had to go to classes so Jamey could be placed on the transplant list? They told us that transplant is not a cure. Transplant is NOT a cure. Some people get a new kidney and bounce right back. Some people don’t. We happen to fall in that… Read more »
Seriously! How cool is that?? She also emails. And she emailed to say that she checked the blog but there wasn’t an update. This blogs for you Grandma Mifflin! I suppose I should start with December 2015. I failed to post that we had an amazing opportunity. Let’s backtrack a bit more… If you’ve read How We Ended Up Here –… Read more »
We did indeed get to go to Thanksgiving. We had a wonderful time with lots of family we haven’t seen in a long while. We also became Adelyn’s Godparents when she celebrated the sacrament of Baptism. It was a beautiful evening! Now onto the virus. Recent labs show it is getting significantly better! Yay!! The down side to this is… Read more »
We had another clinic visit with fantastic news! Guess who gets to go to the season opener?? You got it!! We’ll be UNITED IN ORANGE on Sunday morning! It is a crowded space – but it is open air with lots of places we can go if we feel his health is being compromised. The last game we went to… Read more »
Jamey is feeling GREAT!!! We are down to scheduled once a week visits to clinic/hospital for labs and appointments. He is still working from home daily — but he has been to the office once or twice for a few hours. His immune system is still quite suppressed. We can expect that to be the case for several more months…. Read more »
He is doing great!! We are still going to the hospital twice a week. They draw blood and tell us how to change his meds around. We’ve gotten pretty used to the process and it is now just part of our week. Jamey had been getting pretty light headed when he stood up. We would check his bp and it… Read more »
Today is our first clinic. We have to come back to the hospital twice a week for the next couple of months. They do a blood draw and collect urine to make sure his kidney is doing its job and the antirejection meds are doing thiers.
Jamey’s immune system is shut down almost completely for the next couple months. This helps his body not attack the new kidney. The immunosuppressants will be relaxed a bit around October. We know everyone wants to see him. Hug him. Shake his hand. Please know he is missing this contact too. We are doing everything we can to limit his contact… Read more »